If you or someone you love has chronic inflammatory demyelinating polyneuropathy (CIDP), it's still possible to live a full and rewarding life. Thanks to new therapies and medical advances, people living with CIDP have new options to help them manage their disease.
Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare disorder of the nervous system. Though your immune system generally keeps you healthy by fighting off germs, with CIDP, your immune system does not recognize parts of your nerves and attacks them.
Specifically, the immune system mistakenly attacks your nerves’ protective myelin. When the myelin is damaged or removed, messages transmitted to and from the brain are disrupted and may never make it to their final destination.
Over time, this may cause gradual weakness and a loss of feeling in your arms and legs.
Other symptoms may include, but are not limited to:
If left untreated, CIDP can cause permanent damage to the nerves.
Nerves are responsible for sending messages to and from the brain, like when you want your hand to grasp an object or when your hand tells your brain the stove is hot. Healthy nerves are wrapped in a sheath called myelin, much like electric wires wrapped in rubber insulation. The insulation allows electric impulses to travel efficiently along.
Diagnosis of CIDP is based on symptoms such as loss of sensation (numbness), abnormal sensation (tingling and pain), loss of reflexes, and weakness (difficulty walking, foot drop).
Tests may include nerve conduction and EMG (electromyography) (usually showing a demyelinating neuropathy), spinal fluid analysis (usually showing elevated protein with normal cell count), and blood and urine tests (to rule out other disorders that may cause neuropathy and to look for unusual proteins).
The number of new cases per year of CIDP is about 1 to 2 per 100,000 people, but as the disease can be present in a person for years prior to diagnosis, the prevalence reflecting the accumulation of cases over time may be as high as 9 per 100,000 in some areas.
A list of resources is provided below. Simply click on the link below to view, download, or print your selected item.
Doctor Discussion Guide
This guide will help you talk to your doctor about your condition, treatment options, and the unique features of Hizentra. Simply print this out and bring to your next doctor’s appointment.View/Download PDF
Hizentra Self-administration Video
Watch the Hizentra self-administration video to learn the step‑by‑step instructions on preparation, proper infusion techniques, and administration.
The following tips will help people with CIDP
For more information, discussion boards, and support groups for people living with PI or CIDP, visit these websites:
These programs feature a presentation from a trained nurse and stories from a patient just like you.
Watch a video below to learn more.